Amyotrophic Lateral Sclerosis: A Patient Care Guide for Clinicians

Amyotrophic lateral sclerosisBy

  • Richard S. Bedlack, MD Associate Professor of Neurology, Duke University Medical School and Director, Duke MDA/ALS Clinic
  • Hiroshi Mitsumoto, MD Wesley J. Howe Professor of Neurology, Columbia University Medical Center and Director, Eleanor and Lou Gehrig MDA/ALS Research Center and Neuromuscular Division, Neurological Institute of New York

Amyotrophic Lateral Sclerosis: A Patient Care Guide for Clinicians is a practical reference for clinicians caring for ALS patients that brings together the collective wisdom of those at the forefront of patient-oriented research and practice. The book compiles recent findings of both evidence-based and experience-based research to provide clinicians with tools that improve quality and length of life for people with ALS.

To present a truly multidisciplinary approach to ALS, this book mirrors the organization of a large clinic with separate departments working collaboratively. It begins with a review of current understandings of ALS including diagnostic criteria, genetic and sporadic subtypes, epidemiology, co-morbidities, and prognosis. From there the book is divided into chapters that include neurological assessment, nursing care and coordination, speech and swallowing interventions, nutrition and nutrition therapy, physical therapy, occupational therapy, respiratory therapy, assistive technology, social work practice related to ALS, and web-based resources. Each chapter is led by experts from that discipline who review evidence- and experience-based care options. In addition, the entire North American ALS Research Group (ALSRG) has had a chance to weigh in as well, making this a unique and well-rounded resource. The book addresses everything from breaking the news of an ALS diagnosis to end-of-life care and bereavement. By putting experts in conversation with each other, both within and across individual disciplines, Amyotrophic Lateral Sclerosis: A Patient Care Guide for Clinicians provides comprehensive, real-world care information that can’t be found anywhere else.

Amyotrophic Lateral Sclerosis Features:

  • A practical reference for all members of the ALS care team, covering everything from breaking the news to end-of-life care and bereavement
  • Chapters that mirror the organization of large multi-disciplinary ALS clinics and include pertinent information for each member of the care team
  • Evidence- and experience-based findings provide current scientific and clinical consensus and a forum for real-world care options

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